Monday, March 3, 2008

We missed the month of February

Elijah got sick on Saturday, February 2 and and Dakota got sick on Monday, Feb. 4th.

They both went to the doctor on Tuesday, Feb. 5. Elijah went back to the doctor on Saturday, Feb. 9 and ended up in the hospital with the flu for 5 days. The next week both boys went back to the doctor on Wednesday, Feb. 20 (that happened to be Dakota's birthday). Dakota seemed to get better, but not Elijah. The next week Elijah went to the doctor on Tuesday. By Wednesday night Dakota was seemed to be worse where I thought he was better. Thursday they were both pretty sick so Friday morning I took them both in. Dakota got prescriptions (3 + 2 he already had) and Elijah got admission papers for the hospital. And now it's March.

I took Dakota to Target to get his scripts filled, then home and I packed a few things and then headed to the hospital with Elijah.

We missed the whole month of February.Poor Dakota's 16th birthday was spent at the doctor's office and then off to get Elijah's chest x-rayed.
He said it was so much fun we should plan to do it again next year!

I did give him some money and left Elijah at home with Jody and took Dakota to the mall for a quick shopping spree. He bought several things he wanted then we went to IHOP for a birthday dinner. Jody took him to the movies on Friday and they went off to play golf the next week.I'm sure the golf trip is what made him sick again, but maybe his birthday was saved by getting to do a few special things.

Elijah has Eosinophilic Gastroenteritis, he was diagnosed at 4-5 months old. He has lived on Neocate formula with no foods most of his life. Last year we were finally able to add rice and apple into his diet, so now he has rice, apple and Neocate formula.
Food makes Elijah sick.
I'm not really sure the rice and apple are great for him, but he is the least sick on them then anything else.

He takes his formula through a feeding tube into his stomach. He has a little button on his stomach, we open it and plug him up.

Elijah has good days and bad days. Some days he wakes up and just wants to lay on the couch most of the day. He may lay around a few hours before he feels like doing anything. His stomach is often bloated and hurting. He switches back and forth from being constipated and then having diarrhea all day long. I never know what the day will be like until Elijah wakes up.

We do try to continue on with life and help Elijah have a normal as possible childhood.
It is times like this that reminds us how medically fragile Elijah is though.
Unlike other children who may get colds and such, Elijah can not take over the counter feel good meds like you'd buy at Wal-Mart or Target. Elijah can't even take Tylenol for fever.
Matter of fact Elijah can't take most prescribed meds either. He has reacted to so many meds that his doctor is very careful with what she gives him. He reacts to anything through the gut.
We know he can take rocephin shots or through the vein so that is what we stick with.
Right now in the hospital he is getting Rocephin and steroids through an IV. He is also on breathing treatments.

Elijah has been attending two different homeschool co-ops, at this moment I don't know if he is going to be able to attend the rest of the semester. We sure don't want him to get sick again once he is better.

I just ordered him the cool mask with flames on it as pictured above to wear out in public, but he doesn't seem to happy about having to wear it.

Elijah is doing better tonight. Dakota is still sick at home and I hope he gets well soon. I'd hate for Elijah to get home and get sick again from Dakota.

So the month of February came and went, we missed it.

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