This is the pump we really want. It is smaller then the pump above and will fit in a backpack or a waist pack. This pump is the new and improved pump by Zevex and has less alarms and such. Kids can truly be active with this pump. I'm told they can hang upside down on monkey bars and this pump will still work.
This is like the backpack either pump can fit in. These backpacks are special made with places to attach the bag of formula and a place that holds the pump. Can you believe they charge over $100 for these backpacks? We would be happy to get a new backpack, although Elijah does not want red.
This is the waist pack that Elijah really wants. He is at the age where he is embarrassed about his pump and doesn't want other kids to see it. If he had the waist pack maybe his shirt could cover up the pack. He would be so thrilled if they approved to pay for this, but again these are even over $100. We would actually like to get a backpack and a waist pack to be able to change up, but we'll be doing great to just get one.
Our prayer request are;
1. Formula and supplies will arrive Monday. I can figure out the new packages and how much more formula he will need to last a month and they approve the new figure.
2. Medicaid will approve the Infinity pump, waist pack and backpack or at least the pump and waist pack.
3. If they won't approve the Infinity pump, we need them to at least approve with EnteraLite pump. Elijah needs to be mobile!
Thanks you so much for joining us in prayer for these needs to be met. God has been so good to us and I know he can handle these needs.
Here is what the Zevex company has to say about the Infinity pump. Doesn't this sound great for an 8 year old active boy!
Small, highly accurate and truly portable, the EnteraLite Infinity allows tube fed patients the ability to participate in physical activity, without being held back by their feeding pumps.
Surpassing all other enteral pumps, the EnteraLite Infinity provides active freedom. Use of an enteral feeding pump no longer needs to be a major limitation to the user’s daily schedule.
Designed for both hospital and alternate care use the EnteraLite Infinity’s size, weight, accuracy, and portability promote and support physical activity. Enteral nutrition consumers can now gain the benefits from health-improving physical activity by utilizing new technology that supports active freedom.