My health has went down down down. I try my best to push myself and carry on.... at times it is very hard. Sometimes I just have to give in and say I can't do it and take the day off. I feel so guilty on those days.
I'm off Prednisone completly and I can sure tell it. Prednisone was keeping me going, without it I can hardly function. I hate prednisone, but yet my body wants it so bad. This is the longest I've been off of it since March of 2009.
My current meds are 400 MG of Plaquenil and 200 MG of Savella a day and 15 MG of Methotrexate a week.
Methotrexate is a very very nasty drug. Its a chemo drug and I'd rather do almost anything than take it. Matter of fact I skipped it this week. I take it on Fridays and it takes me until Wednesday to get over the sickness. Then I start all over on Friday. It's horrible! I'm going to have to work up the nerve to go take it again.
I've heard people say they will never do chemo again after doing it once.... I now understand those words. It's so hard to take something knowing how sick it is going to make you. It kills your bad cells, but also kills your good cells AND makes you so sick you think you're gonna die.
AND I have a family to tend to and a 10 year old tube fed child to homeschool! I'm usually so picky about my house being clean, but lately I just don't care. Well I care, I just can't do anything about it and I'm too sick to dwell on it.
I look forward to the day I will be healed and off these nasty drugs!
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2 comments:
I'm so sorry you have to go through this Kayla. I am praying for healing for you! God bless!
Kayla, I am so sorry you are going through this and that the drug isn't a good fit for you. I had no trouble with it at all...and that makes me feel guilty because I feel you may need it more than I did. Methotrexate did however put me back on a healing track...so I hope they can find a solution for you.
LOVE YOU!
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